June 2008- Gage was diagnosed with CDH (there was a hole in his diaphragm and his intestines, spleen, and appendix were all in his chest cavity...and his liver was not sure if it wanted to join the other misplaced organs).
Our doctor in Milledgeville referred us to a doctor in Macon, and the doctor in Macon told us about CHOP- the Children's Hospital of Philadelphia.
WHAT?
Ok...we can do this! With God all things are possible!
June 2008- we made our first trip to Philadelphia (on our first plane ride EVER)
July 2008- we made our second trip to Philadelphia
August 2008-we made our third trip to Philadelphia. This trip is when we nailed down some dates and details for "temporary relocating to Philadelphia". Gage was due on October 9th. They wanted me there no later than Monday, September 22nd.
August 25th...9:30 PM...I started bleeding...and we headed to Macon and were there through August 27...the bleeding stopped even though there was no explanation for why it started to begin with.
August 28- back to Macon...more bleeding. My doctor called Philadelphia...they said stay in Georgia and call after Labor Day weekend...wait it out and just see what happens. When (and if) I do come...it will be best to drive. My doctor in Macon said...I can't tell you what to do...but G O and go NOW!
Friday August 29- mom and I hopped a plane to Philly (yep...against medical advice...not only did we come when they said stay...we flew to boot).
Friday August 29-Tuesday September 2nd- we stayed in a hotel in Philadelphia waiting on Labor Day weekend to pass. If we never see another Diner or another Denny's we will be just fine! I DrEaDeD calling Denise- the head nurse over all things as far as I knew- and the one who told me to stay put. After the initial SHOCK that we came anyway...she got us a room at the Ronald McDonald House in Camden, New Jersey. We couldn't get a room at the RMHouse near CHOP because the baby was not yet born. She also made us an appointment for the following day. Did I mention that I did not bleed the entire stay at the hotel, but started again the morning of my appointment??
Wednesday September 3rd- (4 years ago today)...we went to our appointment. The midwife tells us that I am dilated 3 cm and 75% effaced. I, of course, have no clue what this means. She smiles and says...this baby will be here soon. WHAT???!!! Soon like I need to call Chris soon, or soon like this week? When??? We rock on for a few hours and nothing changes. They debate whether to admit me or not. They decide to go ahead and keep me, and "sure...go ahead and call you husband...we just hate for him to come for nothing". I call him...he leaves work and "packs". I call my sister-in-law. Whitney...is there ANY way you can go to my house, pack your brother, get him a plane ticket, and take him to the airport? Yes? Ok...thanks! She will never know what blessing she was, is, and will always be! Chris arrives around 9:30 PM and nothing has changed still. The midwife and doctor come in, apologize for getting him on a plane, wish us a good night sleep, and give us a run down for the morning.
Thursday September 4th...7:00ish in the morning...I am not feeling so good. I tell mom and she calls the nurse. The nurse checks me and all is well...except not two minutes later I said...uhhh mom...I am pretty sure my water just broke. If you know Ramona LaFavor, then you know that she is the epitome of cool, calm, and collected. She lifts of the covers, smiles and simply says, I think I will just page the nurse. Well...it wasn't water...it was blood. It wasn't a little...it was a LOT! It was so much so that in less that 5 minutes they were prepping me for an emergency C-section and Chris was looking like the Michelin tire man with his white suit on. I was scared, but calm. I was unsure, but certain. God was here. He was RIGHT here. He was here in the form of doctors, nurses, my mom, and my sweet precious husband. God formed that baby with not a mistake in mind and He was gonna complete this good work he started...Gage came a few minutes later. His sweet cry of "I'm here" is all we heard. We didn't see him, hold him, touch him or look at him right away. The OB passed him on to the next group of doctors and nurses who would take him and hook him up to what seemed like a million tubes and machines to ensure that he would have EVERY chance at this precious thing we call life. We later learned it was touch-and-go but that Gage was a "fighter" and was clearly not going to give up! You got that right!
That night the same doctor and midwife from the previous night who apologized for sending for Chris stood at my bedside in amazement without explanation of how PERFECT everything just went. They went on to tell us that had they sent me "home" that night to the Camden RMHouse and had I abrupted (that's what happened to me and why all the bleeding the previous week) in Camden (not 10 miles from CHOP) that the ambulance would not have been able to cross the bridge to get me to CHOP and I would not have been able to deliver there.
God.is.in.every.detail. He.does.not.miss.a.thing.
September 9th...5 short days after his birth...Gage had surgery to repair his CDH. There was not enough diaphragm there to sew it back together (imagine the opening of a balloon and sewing it shut) so they had to sew his tissue to a gortex patch and it would act as his diaphragm and as he grows this tissue will grow to the patch and it will act as part of his missing diaphragm. Amazing. Simply amazing.
For the next 5 weeks God never stopped. He sent family. He sent friends. He sent care package after care package. He sent money, food, encouragement beyond all explanation. He put it on the hearts of SO many to pray...and that they did! We got to hold Gage several weeks after he was born. He had good days and not so good days and so did we. Chris, mom, and I...the 3 amigos...the NICU all-stars...we have some pretty amazing memories!
October 14th...5 weeks after his surgery...and 5 days after his original due date...we came home!
What an amazing journey. I hope and pray I NEVER get tired of recalling as many details as I can. I hope that Gage will one day soon see that scar across his belly and come to know the One who allowed him to live. It is our prayer that one day he can tell his story so that people will hear HIS story! I am thankful that as another August came and went it meant that was one more healthy year for Robert Gage Brown. We were surrounded by people in the NICU who were not as fortunate with the same outcome, and we pray we never forget what God has done!
Gage will be 4 years old in a few short hours. He goes to school with me every day. He talks to anyone and everyone who will listen. He loves life. He loves to laugh. He loves to dance and "shake his booty." He loves all things trains and cars. He can run, swing, and jump on a trampoline and his lungs don't even know that they were, at one point in time, not properly functioning. Gage is tenderhearted and yet stubborn as a mule. He appreciates routine, order, and organization (which I tend to LOVE about him). He is a great big brother and friend to Carter. He L O V E S a book and at the end of the day...wants to take his bath, snuggle up, and end his day like any other "normal" little boy. He sees a lung specialist twice a year, but other than that, if you didn't see the scar, you wouldn't know anything was ever "wrong" with him.
Lord-
We don't know why you chose us to raise such precious boys but we thank you for entrusting us to do so. You are too good to us. You have done and continue to do more than we could ever ask or imagine. You are full of grace and mercy toward us. May we NEVER forget all that you have done for us. We thank you for blessing us FAR beyond belief!
We love you, Chris and Lauren